I suffered from UC from the age of 13 until I had my colon and rectum surgically removed at age 21. I am now 50 years young and not much has really changed regarding treating this disease. Some consider it autoimmune, which I wholeheartedly agree with since I have other related conditions. I had a traditional Ileostomy then converted to a continent Kock Pouch requiring several valve revisions.
Those that suffer from UC and IBD's are extremely embarrassed and feel alone. No one likes to discuss "poop" problems - or be a "pain in the butt". And, this disease has exaberations and sometimes remissions and it really can effect you minute by minute, day to day. I encourage all of you with someone suffering from this to understand it takes an act of bravery to decide what course of action they choose to cope with it -whether or not to say "when" to surgery - if they even have a choice.
We all understand loss - in any form. I wish all IBD's and ostomates peace of mind.
About Me
- JaniceM
- Hashimoto's Thyroiditis; Adrenal Insufficiency; Ulcerative Colitis; Kock pouch ostomate
1 comment:
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